On Saturday, March 27, 2010, I will be participating in the National Walk for Epilepsy on the National Mall in Washington, DC.

Why? Because I was diagnosed with epileptic seizures at the age of 16. I’m lucky enough to be able to control my seizures (which generally occur at night) with daily medication, but not all people with epilepsy are so fortunate.

I have a friend suffering seizures caused as a result of a brain tumor, who is still working to find the right medication for her. I have another friend who has seizures that were triggered by her second pregnancy. Taking medication at all during pregnancy is scary, but not as dangerous as a seizure could be.

Epilepsy — which refers to a number of different seizure disorders — affects lots of people in different ways, and seizure management is a tricky business.

For me, epilepsy means daily medication which I’ve taken since I was first diagnosed (over 20 years ago). The worst thing I have suffered from a seizure is biting my tongue in my sleep. (Although that can be a pretty severe bite.) Learning I would have to take medicine to be ‘normal’ for the rest of my life was a tough thing for a teenager to get used to. But it’s not so bad.

I have been lucky to have pretty great health care, constant coverage via my parents or corporate plans, and access to top-of-the-line research hospitals to be sure I’m getting the right medicine for me. Not everyone is so fortunate. But I like to pay it forward. I contribute to websites that give me free services. And I want to help the research that has helped me. So…

The money I’m helping to raise through the Walk will go towards research for better treatments, to raise awareness and maybe even to find a cure for epilepsy. My hope is that this walk will help bring other families closer to seizure-free daily lives.

Please donate whatever you are able. I know there are many worthy causes asking for donations now, but this one affects someone you know — and maybe some other folks that haven’t had the guts to tell you yet.

Here’s my fundraising page:
Heather’s National Walk for Epilepsy Page

Thank you so much for your support and friendship.